I will begin this write-up by talking about the
way sickle cell disease (SCD) is diagnosed in a child. Some countries’ health
policies get newborn babies checked for abnormal hemoglobin as part of their routine
newborn screening tests.
Remember that newborn screening tests generally
identify severe, life-threatening diseases, including SCD, family history, your
child's medical history and a physical exam. So, you should personally make
sure your newborn baby does screening tests in order to embark on the right treatment
if necessary.
Treatment
begins with a diagnosis
If the screening test for your infant or toddler shows
SCD, the doctor may do a blood test called hemoglobin electrophoresis. This
test can reveal if your baby is a carrier of sickle cell or infected with any sickle
cell gene disease. Other relevant blood tests may be necessary too.
How are kids with sickle cell
disease treated?
The type of treatment your kid gets is based on
their SCD symptoms, age, general health and the severity of the condition.
Early diagnosis and treatment to avoid more
complications are essential here. Your child's healthcare practitioner will
refer you to a hematologist (an expert in blood disorders) and maybe other specialists.
Treatment may include:
Pain
medicines: When pain episodes or crisis strike, pain
medicines is used to reduce the pain.
Hydration: Drinking plenty
of water daily…from between 8 and 10 glasses. This also treats pain crises. In
other instances, the child may need IV (intravenous) fluids.
Blood transfusions: This method treats anemia,
chronic pain, splenic sequestration and acute chest syndrome to prevent stroke.
Antibiotics
and vaccines: These are used to prevent
infections.
Folic acid: It helps
prevent serious anemia.
Regular eye
exams: Are you wondering why eye exams? Well, they
are done to screen for an SCD-eye-related condition known as retinopathy. Ensure
your child gets annual eye exams.
Stem cell
transplant: This transplant is a cure that works well for
some children with Sickle Cell Disease. You can talk with your kid’s healthcare
provider about stem cell transplants.
Hydroxyurea: This potent
medicine can decrease the number of sickle cells in your blood. It can cut down
painful episodes (crises), complications and hospital stays.
Further research is underway on newer medicines.
Discuss all these options with your child’s healthcare provider.
What are the ways I can help my
child live with SCD?
Sickle Cell Disease patients have benefited from
lots of advances in preventive care and new medicines, reducing life-threatening
SCD problems to a significant level. Always ensure that your kid’s condition is
carefully managed by specialists.
The way your
child is managed is based on:
·
The severity of the SCD your child has
·
The type of sickle cell your child has
·
How often SCD complications strike your
child
·
How well your child sticks to preventive measures
Also help your child to have a healthy lifestyle such as eating a
healthy diet, getting enough sleep and drinking plenty of fluids. Other useful
tips include helping your child prevent infections via hygiene and exposures that may trigger a crisis
such as cold weather, high altitudes and swimming in cold water.
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